[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-study-detail:100255781":3},{"organization":4,"armGroups":7,"interventions":13,"overallOfficials":18,"centralContacts":16,"locations":23,"responsibleParty":35,"collaborators":16,"id":38,"slug":39,"hasResults":40,"nctId":41,"briefTitle":42,"officialTitle":42,"acronym":16,"eligibilityCriteria":43,"healthyVolunteers":40,"sex":44,"minAge":45,"maxAge":16,"enrollmentInfo":46,"targetDuration":16,"studyType":49,"phases":50,"briefSummary":52,"conditions":53,"keywords":55,"overallStatus":59,"whyStopped":16,"lastUpdateSubmitDate":60,"lastUpdatePostDateStruct":61,"startDateStruct":63,"completionDateStruct":65,"leadSponsor":67,"locationsCount":68},{"fullName":5,"class":6},"Brugmann University Hospital","OTHER",[8],{"label":9,"type":6,"description":10,"interventionNames":11},"Patients with sicke cell disease","Adult sickle cell disease patients will fill in a survey about the quality of their hospital care, in the transition period between the pediatric to an adult hospital care system.\n\nSince filling in this survey is not part of the standard of care, this study has been defined as interventional.",[12],"Other: Survey",[14],{"type":6,"name":15,"description":16,"armGroupLabels":17,"otherNames":16},"Survey",null,[9],[19],{"name":20,"affiliation":21,"role":22},"Marie-Agnès Azerad, MD","CHU Brugmann","PRINCIPAL_INVESTIGATOR",[24],{"facility":21,"status":16,"city":25,"state":16,"zip":26,"country":27,"countryCode":28,"cosmosGeoPoint":29,"geoPoint":34,"contacts":16},"Brussels","1020","Belgium","BE",{"type":30,"coordinates":31},"Point",[32,33],4.34878,50.85045,{"lat":33,"lon":32},{"type":22,"investigatorFullName":36,"investigatorTitle":37,"investigatorAffiliation":5,"oldNameTitle":16,"oldOrganization":16},"Andre Efira","Head of Clinic","100255781","survey-in-a-population-of-sickle-cell-disease-patients-to-evaluate-the-transition-between-the-queen-fabiola-children-hospital-and-the-chu-brugmann-hospital-and-the-quality-of-the-hospital-care-within-the-chu-brugmann-hospital-100255781",false,"NCT02608580","Survey in a Population of Sickle Cell Disease Patients to Evaluate the Transition Between the Queen Fabiola Children Hospital and the CHU Brugmann Hospital, and the Quality of the Hospital Care Within the CHU Brugmann Hospital.","Inclusion Criteria:\n\n* Sickle cell disease patients, beeing admitted in the CHU Brugmann Hospital (Horta site) after having been followed in the Queen Fabiola Children Hospital.\n\nExclusion Criteria:\n\n* None","ALL","16 Years",{"count":47,"type":48},30,"ACTUAL","INTERVENTIONAL",[51],"NA","Sickle cell disease is a genetic disease responsible for an abnormal hemoglobin.The anomaly has several consequences: a low hemoglobin rate (chronic anemia), plugs formed by red blood cells in blood vessels (extremely painful vaso-occlusive crises) and greater susceptibility to infections.\n\nPatients with this disease should be monitored medically continuously from birth. At adulthood, they will pass from a pediatric medical care system to an adult medical care system.This transition can be experienced with more or less ease, depending on the organization within the pediatric and adult hospitals.\n\nThis questionnaire aims to assess the quality of the transition between pediatric and adult services.The investigators want to better estimate hospital work and improve the quality of care for this type of patients, throughout their entire medical history.",[54],"Sickle Cell Disease",[56,57,58],"pediatric hospital care","adult hospital care","sickle cell disease","COMPLETED","2018-07-11",{"date":62,"type":48},"2018-07-12",{"date":64,"type":48},"2013-12-01",{"date":66,"type":48},"2018-07",{"name":5,"class":6},1]