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(SNAPS-JIA)","Survey on the Expectations of Adolescents With Juvenile Idiopathic Arthritis (JIA) Regarding Knowledge and Communication With Health Care Professionals in the Field of Sexual Health, and Their Parents' Views on the Subject.","SNAPS-JIA","Inclusion Criteria:\n\nPatients :\n\n* Patients with juvenile rheumatoid arthritis aged from 18 to 45 years\n* \\- Major male or female patient \\[18 to 45 years of age\\] with juvenile idiopathic arthritis reported before the age of 16.\n* \\- Able to understand and complete the questionnaire online (speaking and reading French, with an internet connection for completion via RedCap°). ¬\n* \\- Able to give informed consent to participate\n* \\- Involving one's parents in the survey is not a prerequisite for inclusion.\n\nParents :\n\n* Parents of patients with juvenile rheumatoid arthritis aged from 18 to 45 years\n* \\- Parents of adult patients with JIA\n* \\- Parents able to understand and complete the questionnaire online (speaking and reading French, having an internet connection for completion via Red Cap°).\n* \\- Able to give informed consent to participate\n* \\- The parents must have been in charge of the patient as a teenager.\n\nExclusion Criteria:\n\n* Persons opposing participation in the study. The study information letters will specify that participation is consent to participate in the study.\n* Protected persons","ALL","18 Years","45 Years",{"count":261,"type":262},300,"ESTIMATED","OBSERVATIONAL","Sexual health is a legitimate area to explore in the care of these patients, as it has such an impact on quality of life. However, addressing sexual health in a situation of chronic disease confronts the double societal taboo of disease and sexuality. Health professionals are uncomfortable because they are not trained to talk about the subject, especially in the presence of parents and with a teenager they have watched grow up.\n\nIn this context, a needs survey among juvenile idiopathic arthritis (JIA) patients and the point of view of their parents in the field of sexual health seems necessary.\n\nMain objective: To determine the expectations of adolescents (aged 10-19 years) with juvenile idiopathic arthritis regarding knowledge and communication with health care professionals in the field of sexual health.",[266],"Juvenile Idiopathic Arthritis",[268,269,270,271],"Juvenile idiopathic arthritis","Sexual health","Patient education","Needs assessment","UNKNOWN","2021-03-08",{"date":275,"type":276},"2021-03-10","ACTUAL",{"date":278,"type":262},"2021-05",{"date":280,"type":262},"2022-06",{"name":5,"class":6},15]